Went to lunch, and then came home to take Kaylee to her cardiology appointment.
We were there a good hour or more. Kaylee came prepared. She had a spreadsheet of all her symptoms, when they started, all the testing she's had, when she had them, what the results were. It took a lot of prep, and I'm sure it helped the doctor.
She texted me from the back room saying "Answers and steps!" She said she was hesitantly optimistic, that he seemed good, and that she got a little teary when he told her.
First, she definitely has POTS, Postural Orthostatic Tachycardia Syndrome. It's a form of dysautonomia — a disorder of the autonomic nervous system. He is putting her on a beta-blocker, which helps in about 79% of POTS cases. He also wants her to take a salt tablet. She hates salt so she doesn't eat it, and she needs it. So he ordered those two things. The pharmacy came back and said her salt tablets were $331. She texted me like "AYYOHH, $331 for SALT??" So I told her not to pick those up, surely we can get some off Amazon or something for cheaper. Geez-o-pete. We did get the other though. There's a chance that some of the other meds she's on will be rendered less effective with the beta blockers, so we have to keep an eye on that, but we're hoping it helps.
She is going to have to go get a heart monitor to wear for 2 weeks as well. They did an ECG today, and then she has to go to the hospital to get a wearable heart monitor that they stick on a patch to your chest. Ann had the same thing, except hers was a bulky box she had to wear around with a bunch of sticky pads on her chest in several places. This is supposed to just be one pad. Not sure how you shower, honestly, but problems for another day.
This supposedly isn't going to help a lot with the fatigue and brain fog, that's not supposed to be this big of a part of this, but some, and it does help with the inability to exercise or move or stand up and walk or not pass out if she moves too fast or sometimes if she just gets up. He suggested she get back with the neurologist too. So she'll do that. She's just grateful to have some kind of, any kind of answer, start, steps to take, something to try to make life better.
I used to take her for ice cream after doctor appointments when she was little, and even as a teen, but it's January, so I asked if she wanted to go to J Edwards. We got some chocolates and turtles and called it a win of a day. :)
There are little Tik Tok and Instagram and FB videos of people going to chiropractors and getting majorly cracked. Y'all know I love a good crack. They're satisfying to even listen to. lol But ever since I read about how cracking your neck can increase your chances of having a stroke, I see some of these videos and it makes me cringe. Well, a couple things. One guy puts his arm around people's heads and pushes, and that's fine. Another guy twists their head, really hard and at an awkward angle, and it looks like the man is breaking their neck. But the one that absolutely gives me the heebie jeebies is when the chiro wraps a y-strap or a scarf around the patients' neck while they're lying on a table, secures their feet to the table, stands in front of them and stretches their head out with the strap/scarf, and then YANKS. Just pulls very hard. Jerks these people towards him by their HEAD. They say it cracks them all the way down sometimes to their butt or hip or even feet. But...yiiikes. That cannot be good. That can NOT be good. And I love a good crack, but how is that safe? I won't be trying that one.
We've got a lot of projects going on in the hangar now that winter is here. Servicing the boots on the Cheyenne, which requires a huge ladder to get up to the tail, the annual on the T-6 and the C-45, and a big paint booth for painting several projects including Nathan's Glasair III.
Guess that's about it for today. Photos are work/hangar stuff.
Rather tall ladder to get to the top of the Cheyenne tail boots
Paint booth
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