Today...

Late last night our SMA community lost a young lady named Skylar. She was a month and about 10 days away from turning 8 years old. She was a living miracle; so many times she almost died and she always pulled through. Once she was unresponsive and in a coma for three days and all the doctors told her mom to let her go, that she was probably irreparably brain damaged. She woke up three days later perfectly fine, and that was several years ago now. She was one of the weakest SMA children, yet one of the toughest, one of the pioneers in proving to physicians that there Was life for these kids, and she and her mom were true inspirations to a lot of people. She will be missed and remembered. I can't believe she's gone...

Well, this morning Steve and I flew the Citabria for awhile before going to Applebees for lunch. Kaylee only had a half day at school today, so I just went next door and picked her up. We spent some time at Glenndale, then I took her to ballet and cheer practice. This cheer isn't the cheer team she tried out for, which doesn't start until August. This is just "Cheer Level One" class where they do a lot of conditioning, exercise, and cheer moves. Home to do homework and dinner for Kaylee, and bed time. A typical Monday...